#kennerandivy

#595: Fighting for Kenner and Ivy

GETTING MORE TALE #595: Fighting for Kenner and Ivy

Sorry for the lack of musical content in this instalment of Getting More Tale, usually a series of stories about music.  In lieu of a music story, I’ll include my Top Five Tracks About Fighting for a Good Cause at the end!

 


Our friend Kenner Fee has not given up the fight, so neither will we.

Kenner has Autism. And Ivy is a Black Lab. Ivy calms Kenner’s anxieties and helps him cope with school and socializing. Outside of school, the two are inseparable. At school however, Ivy isn’t allowed to be with Kenner. The Waterloo Catholic District School Board says that Kenner doesn’t need a service dog. Kenner’s doctors, psychologists, therapists, parents and the Lions Foundation say otherwise.

Kenner’s parents, Craig and Amy. have been fighting with the WCDSB for over three years to get them to allow Ivy to attend school with Kenner at St. Kateri Catholic Elementary School in Kitchener. The fight has now escalated to the Ontario Human Rights Commission, where the Fee’s have had to invest thousands of dollars into lawyers and their charges, out of pocket. While the WCDSB has, what seems to be, unlimited taxpayer resources to pay for their lawyers.

Kenner was denied his basic human right to have his service dog in class with him.  Allow me to share a little bit about what I know of Kenner, because I see quite a few people are misinformed about this situation.

Ivy is not a therapy dog, as some sources have stated.  She is a service dog, trained and matched by the Lions Foundation of Canada Dog Guides.  Some bystanders have asked, “What about kids who are afraid of dogs?”  An excellent question, and I think Kenner’s supporters have offered a lot of great suggestions about that.  The truth is, if you have ever met a service dog, you know that they basically just…lay there!  That’s part of the training.  Second, having a service dog in a school would be a rare and valuable teaching experience.  I was terrified of dogs as a kid.  I’d run and they’d give chase!  Ivy would not do that, because she is a service dog.  If I had the chance to meet a dog like Ivy as a kid, it really would have helped me get over my fear of dogs earlier.

Another legitimate question has been about kids with allergies.  Supporters have suggested solutions to these problems too.  None of them are unsolvable.  I’m terribly allergic myself.  If there happens to be only one class for Kenner’s grade, make sure the classroom doesn’t have carpet flooring, and keep Kenner on the opposite side of the room as any kids with allergies.  Ensure that teachers have a supply of each child’s allergy medication — Reactine, Visine, whatever.  Why is every other child’s needs more important than Kenner’s?  Allergies are real, but so is autism.  And the results Kenner has seen because of Ivy are extraordinary.  I know a little bit more about the situation than I can talk about, but I can say this.

I’ve seen Kenner, with Ivy at his side, give an amazing speech in front of hundreds of adults.  I couldn’t believe it.  Seeing that knocked me out; he made me see what potential can be unlocked.  He’s a gifted young man.  He deserves to be able to go to school and be at his best.  The Catholic school board keeps talking about how they assess each kid on a case by case basis.  It is interesting to note that they don’t have any service dogs in any of their schools in Ontario.  A child in Burlington is currently fighting the same battle as Kenner Fee, for the same reason.  He too has autism.  I wonder if the Catholic School Board is fighting this so hard simply because it’s easier than doing the work to accommodate. Currently, the Board is denying Kenner his basic right to fulfill his potential in school.  They say he gets good grades without Ivy.  That may be true, but he is truly exceptional when he is with her.  I have seen this and  I admire the little guy.

This is an expensive fight.  A GoFundMe page has been set up.

We’re asking the public to join us in raising  funds to help the Fee’s offset a fraction of the legal expenses they’ve personally incurred throughout the Human Rights Tribunal.  Anything raised over our target amount will be donated to the Lions Foundation of Canada Dog Guides, where Ivy was obtained.

Even if you can’t donate, every comment helps!  I know for a fact that Kenner is blown away by the amount of support he’s seen.  “I didn’t know so many people cared about me!” he said after a recent service dog protest.  He loves to know he has support so feel free to leave a comment, and we’ll make sure his parents get them!

#KennerAndIvy #WeStandWithKennerAndIvy #IStandWithKennerAndIvy

 


Top Five Tracks About Fighting for a Good Cause

5. Triumph – “Fight the Good Fight”

4. Warrior – “Fighting for the Earth”

3. Motley Crue – “Fight for Your Rights”

2. Bob Marley – “Get Up Stand Up”

1. Tom Petty – “I Won’t Back Down”

 

In the top photo there is a service dog and a Party Dog.  Can you tell which is which?

 

 

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#594: St. Anger

GETTING MORE TALE #594: St. Anger

As a half-Italian, part-German, part Scottish guy, I was born with a fuse.  Sometimes that fuse can go off.  Nothing makes me angrier than when my wife, who has epilepsy, is told to “fuck off” because of her need to be away from flashing lights.  We’ve written extensively about epilepsy and our experiences, good and bad.  We are very open about it, happy to answer questions and eager to educate.   So when I hear that my wife had a seizure at the mall because of flashing lights and a guy who told her to “fuck off” and “stay indoors”, I feel like I could explode!

Here’s what happened.  Our wedding anniversary is August 31.  We had a nice dinner booked at Borealis, our favourite local eatery.  Jennifer went out to the mall that afternoon to get some things we needed for the weekend.  At the Walmart checkout, there was a child with those shoes that have flashing lights in the heels.  I don’t understand the need for those shoes.  At night, sure, I get it.  In a brightly lit Walmart, they’re a hazard to people prone to seizures.  An actual hazard as real as a slippery floor.

My wife asked the closest lady if that was her child.  She said “No.”  But it actually was her child.  Jen covered her eyes as the kid danced around the checkout aisle with the flashing heels.  She asked the lady to tell her when the flashing stopped so she could uncover her eyes.  The lady said it stopped.  She opened her eyes and the kid was still dancing and the shoes were still flashing.  She covered her eyes again.  She was getting upset.  Suddenly the lady’s husband showed up out of nowhere and began berating my wife.  He told her to “mind your own business”, that she should “fuck off”, and “stay indoors” if she had a problem with the shoes.

And so, she had a seizure in the checkout.  She doesn’t remember anything after paying for her things.  She remembers telling the cashier that she was probably going to have a seizure.  The next thing she knew is that the paramedics were there and she was in an ambulance.  I will give Walmart and the mall credit for being proactive about this.  They know my wife (unfortunately from past seizures) and they have my phone number on file.  They called me immediately.

I took Jen home and she had a good rest.   We didn’t have our dinner out that night.  But we had a great dinner in, and a lovely anniversary at home.  We went out the following night instead.

Here’s the kick in the nuts.  At the exact time I got that phone call from the mall about my wife, I read the story about how our friend Kenner Fee, who has autism, will not be allowed to bring his service dog to school. It was a painful one-two punch.

The anger simmered in me.  I came home and keyboard-warriored my way around Facebook, to the ignorant trolls on the Kenner Fee threads.  I wrote a few zingers, and before I knew it, two hours had gone by.  But by the end, I wasn’t angry anymore.  It might not have been the healthiest method of anger management.

I think there are two really healthy ways to let the anger out.  They are music, and being physically active.

I like to kill two birds with one stone.  My favourite thing is to put on something fast and heavy.  Metallica works as a go-to.  Testament, even Sabbath, they all work.  Hit play, turn up the volume.  Then I just fucking thrash.  Air drums, air guitar, headbanging, whatever.  Just physically moving with the tunes.  Air drums work fantastic for this.  Lipsynching helps.  Or, sing along if you’re not too self-conscious.

“And I want my anger to be healthy” — Metallica

I remember when I was younger, there was this one girl named Tracy that I really liked.  But she just kept me hanging along for months.  One night she had a friend of hers crank call me, pretending to be somebody from my history class that liked me.  I fell for it and got crushed.  And I was pissed off.

The music that came in handy that time was Motley Crue.  “Primal Scream” might have been their heaviest tune at the time.  The lyrics were in sync too.  “You just got to scream!  And shout!  Let that mother out!”  And I believed that.  Sometimes you do have to let that mother out.

Whatever you do, do it healthy!  I recommend a solid soundtrack of heavy metal to go with it.

Kenner Fee and Ivy vs. Waterloo Catholic District School Board

Reposted from: https://craigfee.wordpress.com/2017/08/31/kenner-fee-and-ivy-vs-waterloo-catholic-district-school-board/

http://kitchener.ctvnews.ca/boy-can-t-bring-service-dog-to-class-human-rights-tribunal-rules-1.3570563

 

Please direct all inquiries to Laura McKeen of Cohen Highley.

We Support #KennerandIvy – VIDEO

No music today, but it’s for a good reason.

Kenner is a friend of the family. Kenner is an exceptionally bright young man, and very well spoken too. It’s not easy though. Kenner has autism, and his service dog Ivy has completely changed his world from night to day. A Human Rights Tribunal is currently deciding whether Kenner should be allowed to have his service dog in school. I know, right? If you have ever been around a service dog, you know they are unobtrusive, however the Waterloo Region Catholic District School Board has decided that Ivy is a “distraction”.  They have ignored the professional opinions of Kenner’s doctors and of the Lions Foundation of Canada Dog Guides. So far, Kenner’s family has been fighting for three years.

Three years for the basic right to have his service dog with him in school.  Three years.

You can read all about Kenner and Ivy here, and here, and here, and just about everywhere else in the news.

A good samaritan named Jolene has taken Kenner’s plight to heart and has organized three rallies.  The last one was on June 19 2017.  The school board was assailed by cheers, honking horns, and best of all, a motorcycle “slow race”.  It turns out that Kenner has support everywhere.  We even saw people come from Kalamazoo, Michigan.  Most exciting were the bikers from several clubs in the region.  I saw Halton, Wellington, and a local club too.  We were treated to some very loud bikes and the guys were just awesome.  The kids loved the motorcycles, and Kenner got to sit on one.

I’m posting this video in support of Kenner, while the Tribunal takes its time making this decision.